The Senedd

EVENT: Endometriosis Care in Wales – Where Are We Now?

Endometriosis UK and Fair Treatment for the Women of Wales Endometriosis Action Month Welsh Senedd virtual panel debate REGISTER HERE Endometriosis UK and Fair Treatment for the Women of Wales invite you to join us hear our Endometriosis Action Month virtual panel debate “Endometriosis Care in Wales – Where are we now?” at 5pm on Thursday 24 March. Speakers include: Jenny Rathbone MS, Chair of the Cross Party Group on Women’s Health Rebecca Taylor, Policy Manager, Endometriosis UK Debbie Shaffer, Fair Treatment for the Women of Wales Jenny Shaw, Endometriosis Clinical Nurse Specialist, Swansea Bay University Health Board Beth Hales,…

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Beth Hales, FTWW Volunteer, presents the petition to Jenny Rathbone and a number of MSes.

Petition to Improve Endometriosis Healthcare in Wales Delivered to The Senedd

Calls for urgent action on waiting lists, more specialist staff and an end to the postcode lottery impacting endometriosis patients across Wales. Support from Sian Harries, Amelia Womack, Jenny Rathbone MS, and patient-led women’s health charity Fair Treatment for the Women of Wales. A petition calling for Welsh Government to Improve Endometriosis Healthcare in Wales was handed in to Jenny Rathbone MS, Chair of the Women’s Health Cross Party Group, at the Senedd today (Wednesday 2nd February 2022). The charity Fair Treatment for the Women of Wales (FTWW) is warning that care for Welsh patients is in crisis and needs…

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FTWW Publishes Annual Impact Report

FTWW is delighted to bring to you the charity’s Annual Impact Report for the financial year 2020 – 2021. The report covers all the ways in which FTWW has strived towards giving a voice to disabled women, girls and those assigned female at birth and those living with chronic / recurrent health conditions. It provides details of activities, campaigns, media coverage, volunteers’ contributions, resources created and distributed, as well as the year’s financial statements.   You can find the report in English and in Welsh, here. 

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White text reads ‘Ein Strategaeth’ and ‘Our Strategy’ on a green overlay. The background image is the timber structure inside the Senedd building.

Women’s Health Included in Senedd’s Health and Social Care Committee Priorities

Exciting news has emerged from the Senedd’s Health and Social Care Committee. On 15th December, the Health and Social Care Committee published its priorities for the next 5 years – and Women’s Health is amongst them. Our supporters will know that this is something on which FTWW has campaigned long and hard, so we’re incredibly pleased to see that ‘listening to lived experience’ will be fundamental to how the Committee will work.  The Committee’s Strategy document lists the following as key to improving outcomes for patients in Wales: widening understanding of unconscious bias access to services for long-term chronic conditions…

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The Welsh Government logo – a white dragon illustration on a red background, with white text underneath reading ‘Llywodraeth Cymru Welsh Government’.

Welsh Government Job Opportunities to Support the Disability Equality Task Force

The Welsh Government is seeking to recruit 3 managers for the interface between the Disability Taskforce, Welsh Government policy and statistical / data analysis teams, disability organisations, the Disability Equality Forum and other interested groups. They will work closely with the Chairs of the Taskforce and Taskforce members. The roles will also support the Taskforce by managing the work of the Taskforce and any sub-groups. The Disability Taskforce was set up in response to the Locked Out Report, which highlighted the impact of the Covid-19 pandemic on Disabled people.  You can find out more by downloading the adverts below.  SEO-…

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International Day of Disabled People

On Tuesday 30 November, Jane Hutt MS, the Minister for Social Justice, delivered a speech to the Senedd regarding the United Nations International Day of Disabled People, which falls on Friday 3 December. The theme for 2021 is ‘fighting for rights in the post-COVID era’.  The Minister acknowledged the work of the Disability Task Force, of which FTWW is a member organisation, following the Locked out report, which highlighted the devastating impact of the pandemic on disabled people in Wales. She also reaffirmed Welsh Government’s commitment to the social model of disability, saying, “We know that it is our society’s…

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A blurred blue and white image taken from a hospital corridor, with an unidentifiable person walking in the centre.

Ending the Postcode Lottery – FTWW Joins Campaign

On 22nd November, we joined more than 20 organisations to launch a new pan-Wales campaign, Ending the Postcode Lottery. The campaign calls for an end to disjointed NHS Wales services and the creation of a single, independent executive to improve care standards. Like many other organisations across Wales, FTWW believes that a single national body with strategic oversight of NHS Wales is vital to drive improvements in patient care and hold health boards to account. A single, independent national NHS organisation would be better placed to improve patient care and deliver on the aims of A healthier Wales, the Welsh government’s plan…

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Dr Louise Newson and Dot Davies sit together on a small blue sofa in Dr Newson's office. They are both looking at the camera and smiling.

Welsh Government Commits to all-Wales Menopause Pathway

You may have seen Dot Davies’ ITV Wales documentary on Menopause, This Week: Tackling The Menopause Taboo, which followed the results of an ITV Cymru Wales survey, which found that more than a third of women said they have considered giving up their work because of their menopause symptoms. In addition, 60% said their symptoms have had a negative impact on their work, with 25% saying they did not feel supported by the workplace while experiencing menopause symptoms. We were delighted that the programme ended with a commitment from Welsh Government to an all-Wales menopause pathway providing same high standard…

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FTWW Responds to Health Minister’s Comments on Lupus Report

On Wednesday 3rd November, Mark Isherwood MS submitted a plenary question to the Senedd asking “How is the Welsh Government supporting people with autoimmune diseases?” (OQ57098). Mr Isherwood, who is Chair of the Cross Party Group (CPG) for Disability, followed up with a longer question referencing FTWW’s report, Making the Case for Better Lupus and Rare Autoimmune Disease Care, which you can watch here: Patients with diseases like #lupus, #vasculitis, #Sjögren‘s and #scleroderma are missing out on better care in Wales.@MarkIsherwood is right to ask the Welsh Government to improve care for patients living with these conditons. — RAIRDA…

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Help Us Help You – while you shop! Donate to FTWW via AmazonSmile

We’re delighted to let you know that you can now support FTWW via AmazonSmile! AmazonSmile is a simple and automatic way for you to support us every time you shop, at no cost to you. AmazonSmile is available at on your web browser and can be activated in the Amazon Shopping App for iOS and Android phones. When you shop with AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as, with the added bonus that AmazonSmile will donate a portion of the purchase price to us. It really is that simple! You…

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Wendy, a white woman with blonde shoulder length hair is smiling at the camera for a selfie. She is wearing a grey and black top and black rimmed glasses, and is in front of a multi-coloured stained glass window.

Making the Case for Better Lupus and Rare Autoimmune Disease Provision for Patients in Wales

FTWW Calls for Better Lupus and Rare Autoimmune Disease Provision for Patients in Wales This Lupus Awareness Month, the patient-led women’s health equality charity makes 21 recommendations to Welsh Government in new report Fair Treatment for the Women of Wales (FTWW) has today published a new report which calls on Welsh Government to improve care for patients living with Lupus and Rare Autoimmune Rheumatic Diseases (RAIRDs). ‘Making the Case for Better Lupus and Rare Autoimmune Disease Provision for Patients in Wales’ highlights issues around diagnostic delays, lack of specialist care in Wales, barriers to tertiary care, and issues in general…

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A selfie of Jessica, a white woman with dark hair, with her partner, a white man with dark and silver hair, and their son, a toddler with blond hair wearing a grey long-sleeved top. Jessica's partner is holding their son, who rests his right hand on his Dad's shoulder. They are all smiling at the camera, and look very happy.

Jessica Nominated for Chwarae Teg Award

  We are absolutely delighted that our Recurrent Miscarriage Campaign Lead, Jessica Evans, is a finalist at this year’s Chwarae Teg Womenspire awards, shortlisted in the Community Campion category. Jessica has campaigned tirelessly for families experiencing the heartbreak of miscarriage, producing the ‘Making the Case for Better Miscarriage Care in Wales’ report, and liaising with health boards and charities to improve care and support for patients across Wales. We are incredibly proud of Jessica for the work she has done whilst experiencing her own losses. The Womenspire awards take place online on Thursday 30 September. We’re sure you’ll all join…

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a screengrab from a BBC Breakfast report. Dee, a white woman with dark hair wearing a blue floral dress, sits with the Newport Transporter Bridge in the background. She's not looking at the camera - she's speaking to the reporter who is out of shot.

Opinion: Engage Britain – Why we must be able to critique the NHS

By Dee Montague, Engagement Officer at FTWW Earlier this year, FTWW facilitated two focus groups as part of Engage Britain’s community conversations around health and social care. Our conversations were two of 101 held across Great Britain, looking to find out more about people’s positive – and negative – experiences of health and social services. One of our groups focused entirely on endometriosis, and the second had a general ‘women’s health’ focus. As part of the publicity around Engage Britain’s conversations and subsequent survey results, I was asked to be a case study for the BBC coverage, and was interviewed…

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The FTWW logo with a yellow ribbon that reads 'endometriosis'

Endometriosis Care in Wales is at Crisis Point

Since FTWW first came into being at the end of 2014, we have campaigned for better endometriosis care in Wales. This was made very clear in the 2018 report we co-produced with Welsh Government’s all-Wales Endometriosis Task & Finish Group. Right now, however, endometriosis provision throughout Wales is at crisis point. There are no endometriosis specialists in Mid or North Wales (although work is underway to improve provision in the latter), and access to specialists in England or Cardiff is not easily achieved. The two remaining endometriosis specialists in Cardiff are becoming increasingly inaccessible, with NHS waiting lists for surgery…

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Bloody Brilliant is Launched

We are delighted that ‘Bloody Brilliant’, an online period health resource created by the young people of Wales for the young people of Wales, is live and on social media. Bloody Brilliant is delivered by Welsh Government and the WHIG (Women’s Health Implementation Group), NHS Wales and Social Change UK, with the ultimate aim of empowering young people so that they feel able to speak openly about periods, understand what’s normal and when to seek medical help – and to support others to do so. Many of FTWW’s members have experience of gynaecological heath conditions like endometriosis, adenomyosis, PCOS, PMDD,…

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Menstrual Wellbeing Education in Wales – The Campaign Continues

On December 15th in the Senedd, Members of our Welsh Parliament debated the new Curriculum & Assessment (Wales) Bill. One third of those in attendance spoke out in support of FTWW and Endometriosis UK’s calls for mandatory Menstrual Wellbeing Education. It is absolutely vital that all young people, regardless of gender, understand what is happening to their bodies as they go through puberty, and recognise what constitutes a ‘normal’ menstrual cycle, so they know when and how to seek help if something isn’t right. Without this knowledge, young people will continue to suffer in silence, without access to the help…

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Outrage at Welsh Government’s Failure to Make Menstrual Education Mandatory

After months of collecting evidence, including that provided by FTWW, Endometriosis UK, and many other individuals, on Friday afternoon, Welsh Parliament’s Children, Young People and Education Committee (CYPE) published its report on the Curriculum and Assessment (Wales) Bill. You can read the report in full here. Unacceptably, the CYPE Committee chose to back the Education Minister’s decision that schools should have the ‘flexibility’ to choose whether to cover Menstrual Wellbeing or not, instead of standing by a commitment to mandatory teaching on the subject given by Members of the Senedd earlier in the year. Part of a unanimously passed motion…

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Manifesto 2021: Make Women’s Health a Priority in Wales

FTWW has just published its new Manifesto which is being sent to all political parties and candidates in the run-up to 2021’s Senedd elections. Our Manifesto is based on the discussions held by our members in a series of online Focus Groups held in October 2020. Our sincerest gratitude to all of those involved, including Rosa: the UK Fund for Women and Girls, for its support in making this manifesto a reality. To read the manifesto in full, or the one-page brief, please select from the links below: Manifesto 2021: Five Wants Manifesto 2021 complete Maniffesto 2021: Pump Eisiau Maniffesto…

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FTWW’s Focus Groups

FTWW invited members from our online forum to participate in a series of focus groups that were held online between the 7th and 12th of October. The particpants in each session were asked to share their views regarding: Women’s Health-Related Priorities The future of FTWW Developing local peer support and involvement in health services within the different localities in Wales. The 90-minute sessions didn’t quite seem long enough to discuss everything. Everyone attending was given time to share their suggestions and their stories, and we were able to see themes emerging on the work that still needs to be done….

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UK Government’s All-Party Parliamentary Group for Endometriosis Launches Ground-breaking Report

Yesterday (October 20th) marked a significant day for endometriosis patients across the UK. Westminster Government’s All-Party Parliamentary Group (APPG) for Endometriosis launched its report into the experiences of the 1 in 10 affected, a report which incorporated the views of over 10,000 respondents.  The findings were shocking but, sadly, not surprising: diagnostic delays, treatment, and outcomes have not improved in over a decade. According to the report, in Wales, the diagnostic delay now averages 9 years – the worst out of all 4 UK nations. Prior to Covid, one third of endometriosis patients in Wales were waiting over 10 months for their operations,…

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