Manifesto 2021: Make Women’s Health a Priority in Wales

FTWW has just published its new Manifesto which is being sent to all political parties and candidates in the run-up to 2021’s Senedd elections. Our Manifesto is based on the discussions held by our members in a series of online Focus Groups held in October 2020. Our sincerest gratitude to all of those involved, including Rosa: the UK Fund for Women and Girls, for its support in making this manifesto a reality. To read the manifesto in full, or the one-page brief, please select from the links below: Manifesto 2021: Five Wants Manifesto 2021 complete Maniffesto 2021: Pump Eisiau Maniffesto…

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FTWW’s Focus Groups

FTWW invited members from our online forum to participate in a series of focus groups that were held online between the 7th and 12th of October. The particpants in each session were asked to share their views regarding: Women’s Health-Related Priorities The future of FTWW Developing local peer support and involvement in health services within the different localities in Wales. The 90-minute sessions didn’t quite seem long enough to discuss everything. Everyone attending was given time to share their suggestions and their stories, and we were able to see themes emerging on the work that still needs to be done….

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UK Government’s All-Party Parliamentary Group for Endometriosis Launches Ground-breaking Report

Yesterday (October 20th) marked a significant day for endometriosis patients across the UK. Westminster Government’s All-Party Parliamentary Group (APPG) for Endometriosis launched its report into the experiences of the 1 in 10 affected, a report which incorporated the views of over 10,000 respondents.  The findings were shocking but, sadly, not surprising: diagnostic delays, treatment, and outcomes have not improved in over a decade. According to the report, in Wales, the diagnostic delay now averages 9 years – the worst out of all 4 UK nations. Prior to Covid, one third of endometriosis patients in Wales were waiting over 10 months for their operations,…

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Endometriosis debated in the Senedd

On October 14th, FTWW was delighted to see endometriosis debated in the Senedd and to be approached to provide crucial data for those leading it. Jenny Rathbone MS, Chair of the Cross-Party Group for Women’s Health, proposed that the Senedd should: Recognise the devastating impact of endometriosis for the 1 in 10 affected and beyond Note the extended diagnostic delay and number of GP appointments required in Wales to get that diagnosis Make menstrual wellbeing education mandatory for all pupils Ensure that more endometriosis specialists are trained and accessible to patients across Wales The Health Minister, Vaughan Gething, responded with a…

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FTWW is now a Registered Charity!

Up until now, FTWW has been a formally constituted not-for-profit organisation, registered with Community and Voluntary Support Conwy, and a member of the Wales Council for Voluntary Action. We’re still those things but can now add registered charity to our status. FTWW is at a very exciting point in its development, with August 2020 marking a change in our status to registered charity with the Charity Commission, registered charity number 1191069.  What does this development mean for FTWW? As a registered charity, more doors are opened to us in terms of public recognition and increased awareness of women’s health issues in…

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FTWW Contributes to Westminster Government’s All-Party Parliamentary Group for Endometriosis

For those not in the know, the UK Government has been conducting an inquiry into endometriosis care across the UK. Whilst health in Wales has been devolved to the Welsh Parliament, Endometriosis UK, the secretariat to the APPG, was keen to hear about the impact of Covid-19 on endometriosis patients in Wales. Back in July 2020 FTWW was pleased to have the opportunity to share members’ concerns about diagnostic delays, escalating waiting times, and the increasing demand on Cardiff’s specialist endometriosis centre – which continues to be the only one of its kind in Wales.

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FTWW Writes to the Welsh Government to get Menstrual Wellbeing on the School Curriculum

The new Education Department Bill introduced in July will see schools in Wales prepare for the biggest change in education for generations. The new curriculum replaces traditional academic subjects with six new Areas of Learning Experience (AoLEs).  At present, the curriculum offers schools the flexibility to decide whether or not to teach menstrual wellbeing. This has the potential to see the topic overlooked, leaving young people without the information they need to know what a normal menstrual cycle is, and when to seek medical help. On September 22nd FTWW in collaboration with Endometriosis UK sent a letter calling for compulsory…

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