EndoMarches Wales Postponed Until Further Notice

It is with heavy hearts that FTWW and the EndoMarch Wales organisers have decided to postpone our two much-anticipated endometriosis-awareness events, EndoMarch Cardiff and EndoMarch Mold, due to take place on Saturday, March 28th, until the situation around Coronavirus is resolved.   Our main reason for doing this is that most participants in our annual marches are already in poor health and we feel that a gathering of EndoMarch’s size simply isn’t appropriate right now. We hope you understand and trust that you will offer your support to any rescheduled events later on in 2020.   Worldwide EndoMarch Inc will…

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Highly Commended at the Welsh Charity Awards!

FTWW was delighted to be awarded runners-up / highly commended, at the recent Welsh Charity Awards. Being a small organisation run by volunteers, up against some incredible competition, we’re truly thrilled!   Huge congratulations to the winners Diabetes UK Cymru, and to the Homeless World Cup, Cardiff, on their amazing achievements.  

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ITV Wales Endometriosis Coverage

We’re incredibly pleased and grateful to ITV Wales for choosing FTWW’s campaign on endometriosis to be their headline feature on today’s evening news. Two of our amazing members, Grace and Lowri, contributed to the piece: Grace shared her personal experiences, whilst Lowri bravely represented the organisation, live, in the ITV studio! We very much hope that coverage like this raises awareness and shatters taboos – and that it encourages Welsh Government to maintain its focus on this condition, both in terms of health service provision and having menstrual well-being on the new school curriculum for Wales.  

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Rosa ‘Voices From The Frontline’ Grant

FTWW is thrilled to have been awarded a ‘Voices From the Frontline‘ grant, aimed at ensuring that women have their voices heard at the highest levels. For FTWW, that means continuing to advocate for women and girls living with a range of health conditions, and whose healthcare needs are not necessarily being met in Wales. Our work empowers those women by providing them with information and support, giving them the confidence to challenge poor treatment and insist on better. On a wider level, we ensure that their experiences are represented far and wide, in Wales and beyond, including health boards,…

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Meeting With Kirsty Williams on Menstrual Health

FTWW Meets with Minister to Discuss Menstrual Well-being on the New School Curriculum for Wales Yesterday, FTWW’s CEO had a meeting with Kirsty Williams, the Minister for Education in Wales, to discuss the potential inclusion of ‘Menstrual Well-being Throughout the Life Course’ in the new school curriculum. In case readers weren’t aware – the school curriculum in Wales will change from 2022. Given how many women across Wales have suffered as a result of a lack of information as an adolescent regarding pelvic pain, what’s ‘normal’ and what’s not when it comes to their menstrual cycles (both physically and mentally),…

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FTWW Represents Patients at the BSGE Conference 2019

FTWW is really thrilled to have been invited to the BSGE – British Society for Gynaecological Endoscopy, conference at Celtic Manor, Newport, by host and lead Cardiff endometriosis specialist, Richard Penketh, to deliver the patient perspective to a global audience. The BSGE conference is one way in which FTWW’s place at the heart of healthcare for women in Wales is being cemented; we represent the power of patient advocacy as key to co-producing services for endo patients across Wales. #PatientPower Quite literally #EndoWarriors, FTWW’s lived experience representatives Lotte and Natalie have not only battled this disease themselves but are now…

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Our First Office / Fundraising Appeal!

FTWW Update and Big Announcement We are finally in a position to announce that FTWW has received funding from Rosa – The Fund for Women & Girls for ONE year, specifically to cover the cost of renting an office space here in North Wales, AND to pay a person one day a week to do administrative duties for the organisation (again, only for one year in the first instance). FTWW ‘HQ’ is finally a reality! ” order_by=”sortorder” order_direction=”ASC” returns=”included” maximum_entity_count=”500″]   SECONDLY, we’ve also received a grant from the National Lottery’s Awards for All programme to deliver the first ever Women’s…

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International Women’s Day 2019

Today, International Women’s Day, is a day where we’re given the opportunity to both celebrate all the wonderful things that women do and are, whilst also reminding people of how it is, still, in the 21st century, we don’t do enough of that celebration – at least, not enough to ensure that women, throughout the world, are valued equally. Well, actually, maybe part of the problem is that we shouldn’t have to have the ‘permission’ that a special, annual, one-off day affords us: Every day should be a day where we all, as a society, value our women: where we…

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