Jacob completes his challenge

Diolch, Jacob and Harriet!

FTWW Volunteer, Harriet Jones, who also runs the @apaininthepelvis Instagram account, was recently invited to talk about Endometriosis by abigo mboke, creator of The Waiting List podcast. They discussed life with endometriosis and why it’s important to be inclusive, as well as the symptoms and temporary ways of managing them.  Listen to the episode here. Speaking of Harriet, we would like to say a huge thank you to her and her partner Jacob Law, who set a huge personal challenge to run 100km during March as part of Endometriosis Action Month, raising money for FTWW and Barbados Association of Endometriosis and PCOS.  Not…

Read More

Welsh Women’s Awards – Women Support Group of the Year

We are delighted to tell you that FTWW have won ‘Women Support Group of the Year’ at the The Welsh Women’s Awards!   Before we became a registered charity, we started out as a Facebook group, which is still going strong today. We welcome those looking for peer support, and also offer proactive involvement opportunities to help shape Welsh Government and NHS policies and services.   We are delighted to have been recognised with this award, and dedicate it to all of our volunteers and members.   Our work aims to achieve equality in healthcare for women and those assigned…

Read More

a screengrab from a BBC Breakfast report. Dee, a white woman with dark hair wearing a blue floral dress, sits with the Newport Transporter Bridge in the background. She's not looking at the camera - she's speaking to the reporter who is out of shot.

Opinion: Engage Britain – Why we must be able to critique the NHS

By Dee Montague, Engagement Officer at FTWW Earlier this year, FTWW facilitated two focus groups as part of Engage Britain’s community conversations around health and social care. Our conversations were two of 101 held across Great Britain, looking to find out more about people’s positive – and negative – experiences of health and social services. One of our groups focused entirely on endometriosis, and the second had a general ‘women’s health’ focus. As part of the publicity around Engage Britain’s conversations and subsequent survey results, I was asked to be a case study for the BBC coverage, and was interviewed…

Read More

The FTWW logo with a yellow ribbon that reads 'endometriosis'

Endometriosis Care in Wales is at Crisis Point

Since FTWW first came into being at the end of 2014, we have campaigned for better endometriosis care in Wales. This was made very clear in the 2018 report we co-produced with Welsh Government’s all-Wales Endometriosis Task & Finish Group. Right now, however, endometriosis provision throughout Wales is at crisis point. There are no endometriosis specialists in Mid or North Wales (although work is underway to improve provision in the latter), and access to specialists in England or Cardiff is not easily achieved. The two remaining endometriosis specialists in Cardiff are becoming increasingly inaccessible, with NHS waiting lists for surgery…

Read More

Finalist Womenspire Awards 2018

Exciting news! We’re delighted to reveal that our Founder and CEO, Debbie, is a finalist in Chwarae Teg’s – Womenspire Awards 2018, Community Activist category. Debbie is incredibly dedicated, and works tirelessly for women in Wales. We are so pleased to see her getting recognised for her achievements. Chwarae Teg received over 400 amazing nominees for the 2018 awards, and found that picking finalists was extremely hard this year. “Community Activist There are many examples of women who have contributed hugely to our communities – particularly at times of crisis or challenge. The purpose of this award is to bring to our attention…

Read More

We Have 500 Members!

It is with great pleasure (tinged with a little sorrow) that we can announce that FTWW: Fair Treatment for the Women of Wales has reached a significant milestone in its relatively short (but highly productive!) existence – over 500 members of the organisation’s online support group! FTWW remains the ONLY Wales-based, patient-led, third sector organisation entirely focused upon girls’ / women’s health equality throughout the region. Despite having NO formal sources of funds, other than the kind donations of supporters, we’re proud to see this group continuing to grow: proud and a little sad that so many women require our…

Read More

FTWW North Wales Members Walk Pier to Pier!

Aelodau Gogledd Cymru FTWW yn Cerdded Pier i Bier!   On Saturday 22nd July @ 5:30pm some of our North Wales FTWW members did a Pier to Pier walk. They walked from Colwyn Bay Pier to Llandudno Pier to help raise awareness and funds for FTWW. Donations of course, are still welcome – please follow this link. We made it #Pier2Pier! A really enjoyable walk from Colwyn Bay pier to Llandudno pier, 5.7 miles in 1 hour 45 minutes – a pretty good pace! Most of it was conducted in glorious sunshine, with just a short spell of rain. We ate ice-creams,…

Read More

FTWW Contributes to Endometriosis Priority Setting Workshop

This week, FTWW was pleased to be invited to participate in the final ‘Endometriosis Priority Setting Workshop’ in London, facilitated by the James Lind Alliance. The JLA was originally created to redress the imbalance between scientific, pharmaceutical, and academic research/ers and the needs / interests / priorities of actual patients, carers, and practitioners. It was also set up to help combat some of the conflicts of interest encountered when all clinical research is designed and implemented by pharmaceutical companies. Ultimately, the idea behind the JLA is to establish those research priorities that people with LIVED EXPERIENCE want, as opposed to…

Read More