Beth Hales, FTWW Volunteer, presents the petition to Jenny Rathbone and a number of MSes.

Petition to Improve Endometriosis Healthcare in Wales Delivered to The Senedd

Calls for urgent action on waiting lists, more specialist staff and an end to the postcode lottery impacting endometriosis patients across Wales. Support from Sian Harries, Amelia Womack, Jenny Rathbone MS, and patient-led women’s health charity Fair Treatment for the Women of Wales. A petition calling for Welsh Government to Improve Endometriosis Healthcare in Wales was handed in to Jenny Rathbone MS, Chair of the Women’s Health Cross Party Group, at the Senedd today (Wednesday 2nd February 2022). The charity Fair Treatment for the Women of Wales (FTWW) is warning that care for Welsh patients is in crisis and needs…

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Endometriosis Care in Wales Event – Follow-up Report

In March, FTWW co-hosted ‘Improving Endometriosis Care in Wales – A Panel Discussion’, in partnership with Endometriosis UK and Fertility Network UK.  For those who missed it or would like to watch again, visit: Improving Endometriosis Care in Wales: A panel discussion – YouTube. We posed attendees’ questions to Richard Penketh and Liz Bruen from the Cardiff BSGE Endometriosis Centre, and Welsh Government. You can read their responses in our report: Improving Endometriosis Care in Wales – Follow-up Report. If you need the report in an alternative format, please email our Engagement Officer, Dee, at engage@ftww.org.uk. 

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Results from new study offer hope for women with endometriosis

FTWW is pleased to see the positive outcome of this study that was published by the BSGE endometriosis centres project yesterday. It reiterates the changes needed that we are proposing to Welsh Government, and will make our case even stronger. A promising step in the right direction for endometriosis patients in the UK, and for the future of endo care here. A landmark study, published today in BMJ Open, has shown that keyhole surgery carried out in specialist centres can ease the pain of endometriosis and improve the quality of life for women living with the disease. The ground-breaking study included…

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FTWW Collaborates with BBC Radio Wales on Endometriosis Documentary

FTWW was absolutely delighted with BBC Radio Wales’s 30 minute documentary on Endometriosis, broadcast on the 7th March 2018, as part of its ‘Eye On Wales’ series. Journalist, Selma Chalabi, collaborated with us on the programme and very much did the issues justice, incorporating personal stories, expert opinions, and our work in a compelling and engaging way. Thank you, Selma – we can safely say that we were proud to be involved in the project and hope to work with you again in the future! Thanks to those that participated and bravely shared their stories. As far as endometriosis goes,…

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Urgent Survey for Endometriosis Patients in the UK

Endometriosis patients throughout the UK – and that includes those WITH and WITHOUT an official diagnosis – your input is required, as a matter of urgency! As you know, FTWW has been instrumental in the setting-up of a Task & Finish group to redesign strategy for prospective / existing endo patients across Wales. Part of this has involved Cardiff University working with us to compile an evidence base to support the recommendations we are making to Welsh Government. To do this, a survey has been designed to collate your experiences. Can you please complete it ASAP? The deadline is 22nd February. The survey…

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FTWW & Cardiff University Work Together to Illustrate Symptoms of Endometriosis

FTWW & Cardiff University Work Together to Illustrate Symptoms of Endometriosis – 3o, January 2018. FTWW members from across Wales were proud and excited to be involved in a new and exciting method of collecting evidence around their experiences of endometriosis this week – a workshop using arts and comics to ‘draw out’ their personal stories, with the ultimate aim of producing an informative booklet to help increase awareness about the condition. As part of Welsh Government’s Task & Finish Group for Endometriosis, we have been working closely with representatives of Cardiff University School of Psychology, to fully gauge and represent the patient…

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We Have 500 Members!

It is with great pleasure (tinged with a little sorrow) that we can announce that FTWW: Fair Treatment for the Women of Wales has reached a significant milestone in its relatively short (but highly productive!) existence – over 500 members of the organisation’s online support group! FTWW remains the ONLY Wales-based, patient-led, third sector organisation entirely focused upon girls’ / women’s health equality throughout the region. Despite having NO formal sources of funds, other than the kind donations of supporters, we’re proud to see this group continuing to grow: proud and a little sad that so many women require our…

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FTWW Contributes to Endometriosis Priority Setting Workshop

This week, FTWW was pleased to be invited to participate in the final ‘Endometriosis Priority Setting Workshop’ in London, facilitated by the James Lind Alliance. The JLA was originally created to redress the imbalance between scientific, pharmaceutical, and academic research/ers and the needs / interests / priorities of actual patients, carers, and practitioners. It was also set up to help combat some of the conflicts of interest encountered when all clinical research is designed and implemented by pharmaceutical companies. Ultimately, the idea behind the JLA is to establish those research priorities that people with LIVED EXPERIENCE want, as opposed to…

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