presenter Alex, who has long dark straight hair and is wearing a pink jumper, speaks to Endometriosis specialist Richard Penketh, who is wearing green clinical scrubs. He is showing her endometriosis tissue on a laptop screen

ITV Wales This Week: Living In Pain – documentary shines spotlight on Endometriosis crisis in Wales

                      A number of FTWW volunteers and supporters featured in Alexandra Hartley’s documentary for ITV Wales This Week: Living In Pain, which covered the issues facing endometriosis patients in Wales – including a lack of specialists and access to them, long waiting times for surgery, and the average diagnosis time of nine years – the longest in all of the home nations.  Dee, FTWW’s Engagement Officer, was interviewed for the programme and had this to say, ‘We need urgent intervention from Welsh Government…If you put ten of your female friends or…

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The Senedd

EVENT: Endometriosis Care in Wales – Where Are We Now?

Endometriosis UK and Fair Treatment for the Women of Wales Endometriosis Action Month Welsh Senedd virtual panel debate REGISTER HERE Endometriosis UK and Fair Treatment for the Women of Wales invite you to join us hear our Endometriosis Action Month virtual panel debate “Endometriosis Care in Wales – Where are we now?” at 5pm on Thursday 24 March. Speakers include: Jenny Rathbone MS, Chair of the Cross Party Group on Women’s Health Rebecca Taylor, Policy Manager, Endometriosis UK Debbie Shaffer, Fair Treatment for the Women of Wales Jenny Shaw, Endometriosis Clinical Nurse Specialist, Swansea Bay University Health Board Beth Hales,…

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Beth Hales, FTWW Volunteer, presents the petition to Jenny Rathbone and a number of MSes.

Petition to Improve Endometriosis Healthcare in Wales Delivered to The Senedd

Calls for urgent action on waiting lists, more specialist staff and an end to the postcode lottery impacting endometriosis patients across Wales. Support from Sian Harries, Amelia Womack, Jenny Rathbone MS, and patient-led women’s health charity Fair Treatment for the Women of Wales. A petition calling for Welsh Government to Improve Endometriosis Healthcare in Wales was handed in to Jenny Rathbone MS, Chair of the Women’s Health Cross Party Group, at the Senedd today (Wednesday 2nd February 2022). The charity Fair Treatment for the Women of Wales (FTWW) is warning that care for Welsh patients is in crisis and needs…

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Endometriosis Care in Wales Event – Follow-up Report

In March, FTWW co-hosted ‘Improving Endometriosis Care in Wales – A Panel Discussion’, in partnership with Endometriosis UK and Fertility Network UK.  For those who missed it or would like to watch again, visit: Improving Endometriosis Care in Wales: A panel discussion – YouTube. We posed attendees’ questions to Richard Penketh and Liz Bruen from the Cardiff BSGE Endometriosis Centre, and Welsh Government. You can read their responses in our report: Improving Endometriosis Care in Wales – Follow-up Report. If you need the report in an alternative format, please email our Engagement Officer, Dee, at engage@ftww.org.uk. 

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Endometriosis debated in the Senedd

On October 14th, FTWW was delighted to see endometriosis debated in the Senedd and to be approached to provide crucial data for those leading it. Jenny Rathbone MS, Chair of the Cross-Party Group for Women’s Health, proposed that the Senedd should: Recognise the devastating impact of endometriosis for the 1 in 10 affected and beyond Note the extended diagnostic delay and number of GP appointments required in Wales to get that diagnosis Make menstrual wellbeing education mandatory for all pupils Ensure that more endometriosis specialists are trained and accessible to patients across Wales The Health Minister, Vaughan Gething, responded with a…

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ITV Wales Endometriosis Coverage

We’re incredibly pleased and grateful to ITV Wales for choosing FTWW’s campaign on endometriosis to be their headline feature on today’s evening news. Two of our amazing members, Grace and Lowri, contributed to the piece: Grace shared her personal experiences, whilst Lowri bravely represented the organisation, live, in the ITV studio! We very much hope that coverage like this raises awareness and shatters taboos – and that it encourages Welsh Government to maintain its focus on this condition, both in terms of health service provision and having menstrual well-being on the new school curriculum for Wales.  

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Results from new study offer hope for women with endometriosis

FTWW is pleased to see the positive outcome of this study that was published by the BSGE endometriosis centres project yesterday. It reiterates the changes needed that we are proposing to Welsh Government, and will make our case even stronger. A promising step in the right direction for endometriosis patients in the UK, and for the future of endo care here. A landmark study, published today in BMJ Open, has shown that keyhole surgery carried out in specialist centres can ease the pain of endometriosis and improve the quality of life for women living with the disease. The ground-breaking study included…

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