The Senedd

EVENT: Endometriosis Care in Wales – Where Are We Now?

Endometriosis UK and Fair Treatment for the Women of Wales Endometriosis Action Month Welsh Senedd virtual panel debate REGISTER HERE Endometriosis UK and Fair Treatment for the Women of Wales invite you to join us hear our Endometriosis Action Month virtual panel debate “Endometriosis Care in Wales – Where are we now?” at 5pm on Thursday 24 March. Speakers include: Jenny Rathbone MS, Chair of the Cross Party Group on Women’s Health Rebecca Taylor, Policy Manager, Endometriosis UK Debbie Shaffer, Fair Treatment for the Women of Wales Jenny Shaw, Endometriosis Clinical Nurse Specialist, Swansea Bay University Health Board Beth Hales,…

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Improving Endometriosis Care in Wales: A Panel Event

On Wednesday 24 March, as part of Endometriosis Awareness Month, FTWW joined forces with Endometriosis UK and Fertility Network UK to host ‘Improving Endometriosis Care in Wales: A Panel Discussion’. FTWW members Anna Cooper and Gemma Doherty shared their powerful stories as patient representatives. They were joined on the panel by Mr Richard Penketh and Liz Bruen, key members of Cardiff’s specialist endometriosis team, Professor Jason Kasraie, Head of Fertility Services at Shrewsbury and Telford, Dr Anne Connolly, the Royal College of GPs’ Women’s Health Champion, and Senedd Member, Jenny Rathbone, Chair of the Women’s Health Cross Party Group. There was lots of positive discussion about projects in…

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EndoMarch is Coming to Llandudno!

Following our successful Wales marches in Cardiff, and Swansea, in 2019 we will have our first ever North Wales march, in Llandudno, Conwy. Join us on Saturday, March 30th from 1pm to be part of this huge global event, the Worldwide EndoMarch. The march will take place on the prom in Llandudno. We will be starting, and finishing at St George’s Hotel – with complimentary drinks, and cake at the end – of course! Our aim is to turn Llandudno yellow, whilst raising awareness of endometriosis – a debilitating, misunderstood condition, listed by the NHS as one of the ten most…

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Endo What? Film Night at Manorhaus Ruthin

Over two years on from the release of Endo What? and the screenings that FTWW hosted in Cardiff, and Rhos on Sea, Samantha one of our North Wales members decided to organise another showing of this groundbreaking film that busts the myths around endometriosis! This time the event was a film night, on Tuesday 7th August 2018, held at Manorhaus, a 5* boutique hotel in Ruthin, Denbighshire. The total amount raised from the screening and the raffle was a fantastic £300 – which will be shared between FTWW and Endo What? ” order_by=”sortorder” order_direction=”ASC” returns=”included” maximum_entity_count=”500″] It was a brilliant, uplifting evening,…

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FTWW Collaborates with BBC Radio Wales on Endometriosis Documentary

FTWW was absolutely delighted with BBC Radio Wales’s 30 minute documentary on Endometriosis, broadcast on the 7th March 2018, as part of its ‘Eye On Wales’ series. Journalist, Selma Chalabi, collaborated with us on the programme and very much did the issues justice, incorporating personal stories, expert opinions, and our work in a compelling and engaging way. Thank you, Selma – we can safely say that we were proud to be involved in the project and hope to work with you again in the future! Thanks to those that participated and bravely shared their stories. As far as endometriosis goes,…

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Urgent Survey for Endometriosis Patients in the UK

Endometriosis patients throughout the UK – and that includes those WITH and WITHOUT an official diagnosis – your input is required, as a matter of urgency! As you know, FTWW has been instrumental in the setting-up of a Task & Finish group to redesign strategy for prospective / existing endo patients across Wales. Part of this has involved Cardiff University working with us to compile an evidence base to support the recommendations we are making to Welsh Government. To do this, a survey has been designed to collate your experiences. Can you please complete it ASAP? The deadline is 22nd February. The survey…

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FTWW & Cardiff University Work Together to Illustrate Symptoms of Endometriosis

FTWW & Cardiff University Work Together to Illustrate Symptoms of Endometriosis – 3o, January 2018. FTWW members from across Wales were proud and excited to be involved in a new and exciting method of collecting evidence around their experiences of endometriosis this week – a workshop using arts and comics to ‘draw out’ their personal stories, with the ultimate aim of producing an informative booklet to help increase awareness about the condition. As part of Welsh Government’s Task & Finish Group for Endometriosis, we have been working closely with representatives of Cardiff University School of Psychology, to fully gauge and represent the patient…

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