Results from new study offer hope for women with endometriosis

FTWW is pleased to see the positive outcome of this study that was published by the BSGE endometriosis centres project yesterday. It reiterates the changes needed that we are proposing to Welsh Government, and will make our case even stronger. A promising step in the right direction for endometriosis patients in the UK, and for the future of endo care here. A landmark study, published today in BMJ Open, has shown that keyhole surgery carried out in specialist centres can ease the pain of endometriosis and improve the quality of life for women living with the disease. The ground-breaking study included…

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We Have 500 Members!

It is with great pleasure (tinged with a little sorrow) that we can announce that FTWW: Fair Treatment for the Women of Wales has reached a significant milestone in its relatively short (but highly productive!) existence – over 500 members of the organisation’s online support group! FTWW remains the ONLY Wales-based, patient-led, third sector organisation entirely focused upon girls’ / women’s health equality throughout the region. Despite having NO formal sources of funds, other than the kind donations of supporters, we’re proud to see this group continuing to grow: proud and a little sad that so many women require our…

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FTWW Contributes to Endometriosis Priority Setting Workshop

This week, FTWW was pleased to be invited to participate in the final ‘Endometriosis Priority Setting Workshop’ in London, facilitated by the James Lind Alliance. The JLA was originally created to redress the imbalance between scientific, pharmaceutical, and academic research/ers and the needs / interests / priorities of actual patients, carers, and practitioners. It was also set up to help combat some of the conflicts of interest encountered when all clinical research is designed and implemented by pharmaceutical companies. Ultimately, the idea behind the JLA is to establish those research priorities that people with LIVED EXPERIENCE want, as opposed to…

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