Senedd Archives

Senedd Inquiry – Supporting People with Chronic Conditions: FTWW members have their say

January 30, 2024

You may recall that last year, the Senedd’s Health and Social Care Committee launched their inquiry into supporting people with chronic conditions. The consultation stage revealed a clear overarching message for the need to improve person-centred, holistic care, and to stop focusing on individual conditions in isolation. Stage two of the inquiry involves gathering evidence, and this month, members of FTWW’s support group attended two focus groups with the Senedd’s citizen engagement team, providing powerful testimonies around their lived experiences – and what they believe needs to be done to improve health and care for people living with long-term conditions….

Update from the Welsh Government’s Ministerial Disability Rights Taskforce

September 26, 2023

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We’re delighted to bring you an update from the Disability Rights Taskforce, in which FTWW and our volunteers regularly participate. The Taskforce sends a big thank you to members of the working groups which have now concluded their deliberations, all of which have been Chaired by people with their own lived experience of disability. The working groups saw people with lived experience and expertise, disabled people’s organisations, and Welsh Government policy leads coming together to hear about the things that are important to disabled and chronically ill people and to think about how to remove barriers affecting their lives. Recommendations…

A screengrab from the online meeting of FTWW, BHF and the Senedd's Health and Social Care Committee

FTWW Gives Evidence on Women’s Health to Senedd

March 11, 2022

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Thursday March 10th saw representatives of both FTWW and British Heart Foundation Cymru called upon by the Senedd’s Health and Social Care Committee to give evidence in support of a women’s health plan for Wales. FTWW and BHF Cymru have been co-facilitating a third sector coalition, made up of a number of Royal Colleges, specialist charities, and patients, in developing a vision for women and girls’ health in Wales which has a holistic, life-course approach and encompasses a range of physical and mental health issues, all which have a particular impact on women. On behalf of that Coalition, our two…

FTWW Responds to Health Minister’s Comments on Lupus Report

November 8, 2021

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On Wednesday 3rd November, Mark Isherwood MS submitted a plenary question to the Senedd asking “How is the Welsh Government supporting people with autoimmune diseases?” (OQ57098). Mr Isherwood, who is Chair of the Cross Party Group (CPG) for Disability, followed up with a longer question referencing FTWW’s report, Making the Case for Better Lupus and Rare Autoimmune Disease Care, which you can watch here: Patients with diseases like #lupus, #vasculitis, #Sjögren‘s and #scleroderma are missing out on better care in Wales.@MarkIsherwood is right to ask the Welsh Government to improve care for patients living with these conditons. pic.twitter.com/yz6pN28MzD — RAIRDA…

Senedd 2021: Ask your candidates to Make Women’s Health a Priority in Wales

July 12, 2021

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The 2021 Senedd Election takes place on 6th May, and FTWW needs your help! FTWW has written to candidates calling on them to read our 2021 Manifesto and make its 5 Wants key to their election campaigns – and future commitments if they are elected. Our voices are more powerful when we use them together, so we are also asking our supporters to write to their local candidates. Will you ask them to adopt the manifesto and address healthcare inequalities here in Wales. You can use our FTWW bilingual template letter to candidates – which includes campaign links and graphics – or you might choose to…

Endometriosis debated in the Senedd

October 20, 2020

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On October 14th, FTWW was delighted to see endometriosis debated in the Senedd and to be approached to provide crucial data for those leading it. Jenny Rathbone MS, Chair of the Cross-Party Group for Women’s Health, proposed that the Senedd should: Recognise the devastating impact of endometriosis for the 1 in 10 affected and beyond Note the extended diagnostic delay and number of GP appointments required in Wales to get that diagnosis Make menstrual wellbeing education mandatory for all pupils Ensure that more endometriosis specialists are trained and accessible to patients across Wales The Health Minister, Vaughan Gething, responded with a…