Task and Finish Group Archives

presenter Alex, who has long dark straight hair and is wearing a pink jumper, speaks to Endometriosis specialist Richard Penketh, who is wearing green clinical scrubs. He is showing her endometriosis tissue on a laptop screen

ITV Wales This Week: Living In Pain – documentary shines spotlight on Endometriosis crisis in Wales

April 28, 2022

A number of FTWW volunteers and supporters featured in Alexandra Hartley’s documentary for ITV Wales This Week: Living In Pain, which covered the issues facing endometriosis patients in Wales – including a lack of specialists and access to them, long waiting times for surgery, and the average diagnosis time of nine years – the longest in all of the home nations. Dee, FTWW’s Engagement Officer, was interviewed for the programme and had this to say, ‘We need urgent intervention from Welsh Government…If you put ten of your female friends or…

Endometriosis Nurses stand with the Health Minister and Chief Nursing Officer inside the Senedd

FTWW’s Volunteers Help to Deliver Training to Wales’s Endometriosis Nurses

March 21, 2022

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Thursday 17th and Friday 18th March proved to be incredibly exciting for FTWW, with 18 of our volunteers participating in a 2-day training event for Wales’s new endometriosis nurses. Funded by the Welsh Government and recently appointed by every health board, the nurses will support patients with suspected and confirmed endometriosis as they navigate care between primary (GP) and secondary (gynaecologist) care. For many patients, this will involve pain management, pelvic physiotherapy, and waiting for what can be a long time to access surgery. Our volunteers were pleased to share their experiences as well as give the nurses the opportunity…

Beth Hales, FTWW Volunteer, presents the petition to Jenny Rathbone and a number of MSes.

Petition to Improve Endometriosis Healthcare in Wales Delivered to The Senedd

February 2, 2022

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Calls for urgent action on waiting lists, more specialist staff and an end to the postcode lottery impacting endometriosis patients across Wales. Support from Sian Harries, Amelia Womack, Jenny Rathbone MS, and patient-led women’s health charity Fair Treatment for the Women of Wales. A petition calling for Welsh Government to Improve Endometriosis Healthcare in Wales was handed in to Jenny Rathbone MS, Chair of the Women’s Health Cross Party Group, at the Senedd today (Wednesday 2nd February 2022). The charity Fair Treatment for the Women of Wales (FTWW) is warning that care for Welsh patients is in crisis and needs…

Endometriosis: Statement from the Cabinet Secretary for Health

October 16, 2018

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Statement from Vaughan Gething, Cabinet Secretary for Health and Social Services It’s been a long time coming….But we are absolutely thrilled to announce that Welsh Government has finally released its statement on endometriosis. FTWW’s report ‘Making the Case for Better Endometriosis Care in Wales’ prompted the Chief Executive of the NHS in Wales to establish a Task and Finish group to review endometriosis services. As many of you may know already, FTWW was invited to represent patients on the group, and our CEO was instrumental in putting together its final report, along with Mr Richard Penketh, the group’s Chair and…

FTWW Contributes to BBC Wales & S4C Coverage of Endometriosis

December 10, 2017

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The first week of December 2017 has been a very exciting one for FTWW and endometriosis patients across Wales. Thanks to our on-going work with Welsh Government to improve strategy, our involvement in the new NICE guidelines for the condition, published in September, and the creative efforts of one of our members, Jaimee McCormack, creator of the Cardiff EndoWall, daily news programmes BBC Wales Today and Newyddion 9 on S4C, decided to make endometriosis their featured item on Wednesday 6th December and we were pleased to be asked to contribute! Our CEO, featured in the BBC’s evening bulletins, was invited to…