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Welcome Our New Trustees!

Last year we advertised FTWW Trustee roles and received so many excellent applications, which led to a very challenging shortlisting process, but we are delighted to welcome seven new trustees to the FTWW Board. We genuinely felt that we could have recruited every single applicant shortlisted, and we’d like to thank all who took the time to apply. Meet our new trustees here. 

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Endometriosis Action Month

Virtual Event – Endometriosis and The Women & Girls’ Health Plan

March is Endometriosis Action Month, and we are delighted to invite you to attend a virtual event on Thursday 23rd March from 6.00pm – 7.30pm. The event will be chaired by Jenny Rathbone MS. The focus of the event is on the NHS Wales and Welsh Government Women and Girls’ Health Plan for Wales and will be an opportunity to hear from a guest panel of experts and patients who will discuss what they would like to see included in the Plan which is currently under development and due for publication this year. Register for the event here. If you…

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Rachel Rowlands

FTWW Included in BBC Fertility Coverage

  ‘Desperate women will take desperate measures’ when it comes to trying to lose weight in order to be allowed access to fertility treatment, says Dee, FTWW Engagement Officer.   We hear all too often from our members and beyond that those struggling with health conditions like Polycystic Ovarian Syndrome (PCOS), key symptoms of which can be weight gain and infertility are simply told to lose weight when trying to get pregnant, with little to no understanding of why they might be finding it difficult.   The effect on mental health can be significant, not least because there are strict…

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BBC Walescast – FTWW Joins Women’s Health Takeover

This month, FTWW’s Engagement Officer, Dee, appeared on BBC Wales News Walescast Women’s Health takeover.  Hosted by BBC Wales News Health Reporter Jenny Rees, Dee was delighted to join Mrs Julie Cornish, who heads up Wales’ first Pelvic Health Hub at Cardiff and Vale University Health Board, and Dr Amara Naseem from Muslim Doctors Cymru to discuss health inequalities in Wales, and how they impact women, girls and those assigned female at birth.   This programme ties in with BBC Wales’s coverage of the concerns raised by the #WomensHealthWales Coalition, which is co-chaired by FTWW and British Heart Foundation Cymru,…

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UK Health Radio’s Autistic Voices welcomes Willow

FTWW Trustee, Willow Holloway, recently featured on UK Health Radio’s Autistic Voices programme, hosted by Evalynne Charmer. Willow told Evalynne about her roles with FTWW, Autistic UK, the Autistic Women’s Empowerment Project, and Disability Wales, and about her lived experience as a late-diagnosed autistic woman. Tune in here.

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an IUD (coil) lies on a blue, pink and yellow background

ITV Wales News Covers Contraception Delays

There are concerns women are at risk of unwanted pregnancies in some parts of Wales due to “significant” delays within sexual health services, as reported by ITV Wales.  FTWW told ITV News that it is “vital” that women are able to access the treatment they need “as soon as possible”. “’It’s important to realise that these devices can be used both for contraception and relief of symptoms from gynaecological health conditions. Issues like pelvic pain and heavy bleeding can have a really significant and detrimental impact on women’s lives and we know that many of those affected can find it…

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Welsh Government Publishes its Quality Statement for Women and Girls’ Health

Tuesday, 5th July saw the Welsh Government publish its Quality Statement for Women & Girls’ Health which, we’re pleased to say, very much echoes the report published in May by the #WomensHealthWales Coalition, co-chaired by FTWW and British Heart Foundation Cymru. The Welsh Government’s Quality Statement is designed to provide all 7 health boards in Wales with its expectations of what good quality health services for women and girls should look like.  Over the summer, the Welsh Government will embark on a range of engagement activities to co-produce a 10-year ‘action plan’ to achieve those expectations. We will keep you posted on how you…

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FTWW Publishes Annual Impact Report

FTWW is delighted to bring to you the charity’s Annual Impact Report for the financial year 2020 – 2021. The report covers all the ways in which FTWW has strived towards giving a voice to disabled women, girls and those assigned female at birth and those living with chronic / recurrent health conditions. It provides details of activities, campaigns, media coverage, volunteers’ contributions, resources created and distributed, as well as the year’s financial statements.   You can find the report in English and in Welsh, here. 

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The FTWW logo with a yellow ribbon that reads 'endometriosis'

Endometriosis Care in Wales is at Crisis Point

Since FTWW first came into being at the end of 2014, we have campaigned for better endometriosis care in Wales. This was made very clear in the 2018 report we co-produced with Welsh Government’s all-Wales Endometriosis Task & Finish Group. Right now, however, endometriosis provision throughout Wales is at crisis point. There are no endometriosis specialists in Mid or North Wales (although work is underway to improve provision in the latter), and access to specialists in England or Cardiff is not easily achieved. The two remaining endometriosis specialists in Cardiff are becoming increasingly inaccessible, with NHS waiting lists for surgery…

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FTWW’s Response to ‘Locked out: liberating disabled people’s lives and rights in Wales beyond Covid-19’

FTWW welcomes the publication of, ‘Locked out…’, a ground-breaking report on the impact of Covid19 on disabled people in Wales. We were pleased to be among the diverse and intersectional group of disabled people and organisations involved in coproducing it. We are encouraged that the report had Welsh Government’s full support throughout, and has been published it in its entirety with no redactions. A Minister-led task force is now being created, co-chaired by members of the disabled community, to implement recommendations. This will mean that the voices and experiences of disabled people in Wales are properly heard throughout discussions and that,…

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Welsh Government Publishes Report on Impact of Covid-19 on Disabled People

Today, Welsh Government has published ‘Locked out: liberating disabled people’s lives and rights in Wales beyond COVID-19‘, a report about the impact of the COVID-19 pandemic on disabled people here in Wales. The hard-hitting report also highlights recommendations to be implemented moving forward.  FTWW was a member organisation of the Disability Equality Forum Steering Group, which was involved in coproducing the report, and was delighted to have the opportunity to represent the views of Disabled* women and those assigned female at birth (AFAB). In response to the Report’s publication, the Steering Group has released the statement below:  ‘As the Disability…

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Improving Endometriosis Care in Wales: A Panel Event

On Wednesday 24 March, as part of Endometriosis Awareness Month, FTWW joined forces with Endometriosis UK and Fertility Network UK to host ‘Improving Endometriosis Care in Wales: A Panel Discussion’. FTWW members Anna Cooper and Gemma Doherty shared their powerful stories as patient representatives. They were joined on the panel by Mr Richard Penketh and Liz Bruen, key members of Cardiff’s specialist endometriosis team, Professor Jason Kasraie, Head of Fertility Services at Shrewsbury and Telford, Dr Anne Connolly, the Royal College of GPs’ Women’s Health Champion, and Senedd Member, Jenny Rathbone, Chair of the Women’s Health Cross Party Group. There was lots of positive discussion about projects in…

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EndoMarches Wales Postponed Until Further Notice

It is with heavy hearts that FTWW and the EndoMarch Wales organisers have decided to postpone our two much-anticipated endometriosis-awareness events, EndoMarch Cardiff and EndoMarch Mold, due to take place on Saturday, March 28th, until the situation around Coronavirus is resolved.   Our main reason for doing this is that most participants in our annual marches are already in poor health and we feel that a gathering of EndoMarch’s size simply isn’t appropriate right now. We hope you understand and trust that you will offer your support to any rescheduled events later on in 2020.   Worldwide EndoMarch Inc will…

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Highly Commended at the Welsh Charity Awards!

FTWW was delighted to be awarded runners-up / highly commended, at the recent Welsh Charity Awards. Being a small organisation run by volunteers, up against some incredible competition, we’re truly thrilled!   Huge congratulations to the winners Diabetes UK Cymru, and to the Homeless World Cup, Cardiff, on their amazing achievements.  

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ITV Wales Endometriosis Coverage

We’re incredibly pleased and grateful to ITV Wales for choosing FTWW’s campaign on endometriosis to be their headline feature on today’s evening news. Two of our amazing members, Grace and Lowri, contributed to the piece: Grace shared her personal experiences, whilst Lowri bravely represented the organisation, live, in the ITV studio! We very much hope that coverage like this raises awareness and shatters taboos – and that it encourages Welsh Government to maintain its focus on this condition, both in terms of health service provision and having menstrual well-being on the new school curriculum for Wales.  

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Rosa ‘Voices From The Frontline’ Grant

FTWW is thrilled to have been awarded a ‘Voices From the Frontline‘ grant, aimed at ensuring that women have their voices heard at the highest levels. For FTWW, that means continuing to advocate for women and girls living with a range of health conditions, and whose healthcare needs are not necessarily being met in Wales. Our work empowers those women by providing them with information and support, giving them the confidence to challenge poor treatment and insist on better. On a wider level, we ensure that their experiences are represented far and wide, in Wales and beyond, including health boards,…

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Meeting With Kirsty Williams on Menstrual Health

FTWW Meets with Minister to Discuss Menstrual Well-being on the New School Curriculum for Wales Yesterday, FTWW’s CEO had a meeting with Kirsty Williams, the Minister for Education in Wales, to discuss the potential inclusion of ‘Menstrual Well-being Throughout the Life Course’ in the new school curriculum. In case readers weren’t aware – the school curriculum in Wales will change from 2022. Given how many women across Wales have suffered as a result of a lack of information as an adolescent regarding pelvic pain, what’s ‘normal’ and what’s not when it comes to their menstrual cycles (both physically and mentally),…

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FTWW Represents Patients at the BSGE Conference 2019

FTWW is really thrilled to have been invited to the BSGE – British Society for Gynaecological Endoscopy, conference at Celtic Manor, Newport, by host and lead Cardiff endometriosis specialist, Richard Penketh, to deliver the patient perspective to a global audience. The BSGE conference is one way in which FTWW’s place at the heart of healthcare for women in Wales is being cemented; we represent the power of patient advocacy as key to co-producing services for endo patients across Wales. #PatientPower Quite literally #EndoWarriors, FTWW’s lived experience representatives Lotte and Natalie have not only battled this disease themselves but are now…

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Our First Office / Fundraising Appeal!

FTWW Update and Big Announcement We are finally in a position to announce that FTWW has received funding from Rosa – The Fund for Women & Girls for ONE year, specifically to cover the cost of renting an office space here in North Wales, AND to pay a person one day a week to do administrative duties for the organisation (again, only for one year in the first instance). FTWW ‘HQ’ is finally a reality! ” order_by=”sortorder” order_direction=”ASC” returns=”included” maximum_entity_count=”500″]   SECONDLY, we’ve also received a grant from the National Lottery’s Awards for All programme to deliver the first ever Women’s…

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International Women’s Day 2019

Today, International Women’s Day, is a day where we’re given the opportunity to both celebrate all the wonderful things that women do and are, whilst also reminding people of how it is, still, in the 21st century, we don’t do enough of that celebration – at least, not enough to ensure that women, throughout the world, are valued equally. Well, actually, maybe part of the problem is that we shouldn’t have to have the ‘permission’ that a special, annual, one-off day affords us: Every day should be a day where we all, as a society, value our women: where we…

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