presenter Alex, who has long dark straight hair and is wearing a pink jumper, speaks to Endometriosis specialist Richard Penketh, who is wearing green clinical scrubs. He is showing her endometriosis tissue on a laptop screen

ITV Wales This Week: Living In Pain – documentary shines spotlight on Endometriosis crisis in Wales

                      A number of FTWW volunteers and supporters featured in Alexandra Hartley’s documentary for ITV Wales This Week: Living In Pain, which covered the issues facing endometriosis patients in Wales – including a lack of specialists and access to them, long waiting times for surgery, and the average diagnosis time of nine years – the longest in all of the home nations.  Dee, FTWW’s Engagement Officer, was interviewed for the programme and had this to say, ‘We need urgent intervention from Welsh Government…If you put ten of your female friends or…

Read More

FTWW Publishes Annual Impact Report

FTWW is delighted to bring to you the charity’s Annual Impact Report for the financial year 2020 – 2021. The report covers all the ways in which FTWW has strived towards giving a voice to disabled women, girls and those assigned female at birth and those living with chronic / recurrent health conditions. It provides details of activities, campaigns, media coverage, volunteers’ contributions, resources created and distributed, as well as the year’s financial statements.   You can find the report in English and in Welsh, here. 

Read More

Baby Loss Debated in The Senedd

Today marks the start of Baby Loss Awareness Week. We’d like to say a huge thank you to all the AMs who took part in the Pregnancy and Baby Loss debate in The Senedd, last Wednesday. Also to Lynne Neagle, Adam Price, and David Rees AMs, for putting the topic forward for debate. Special thanks to Lynne Neagle, and Caroline Jones AMs for raising the issues that exist with miscarriage care in Wales, and to all the AMs who referenced the problems raised in our report. Caroline Jones urged Health Minister Vaughan Gething to support the recommendations made in our…

Read More

Our Founder Recognised by Amnesty International for her Suffragette Spirit!

We are absolutely thrilled to announce, that our founder, and CEO Debbie has made it on to the Amnesty International Suffragette Spirit map for International Women’s Day 2018. She has been recognised as a human rights defender, due to her work campaigning for better healthcare for women in Wales. Congratulations Debbie, and thanks for all you do, very well deserved! “Who is making history today? 100 years ago British women finally won the right to vote.* The incredible work of the suffragettes – ordinary women who stopped at nothing to get their voices heard – paved the way for a…

Read More

FTWW Collaborates with BBC Radio Wales on Endometriosis Documentary

FTWW was absolutely delighted with BBC Radio Wales’s 30 minute documentary on Endometriosis, broadcast on the 7th March 2018, as part of its ‘Eye On Wales’ series. Journalist, Selma Chalabi, collaborated with us on the programme and very much did the issues justice, incorporating personal stories, expert opinions, and our work in a compelling and engaging way. Thank you, Selma – we can safely say that we were proud to be involved in the project and hope to work with you again in the future! Thanks to those that participated and bravely shared their stories. As far as endometriosis goes,…

Read More

FTWW Featured on Localgiving Blog

‘Building support for a difficult or sensitive cause’ FTWW has featured on this month’s blog by all-Wales fundraising charity, Localgiving.com​, entitled, ‘Building Support for a Difficult or Sensitive Cause’… I am sure you’d agree that it’s wonderful to see such recognition for our members’ efforts, as well as a great opportunity to raise awareness of the organisation and our work. Thanks, ladies – great job, and thanks to the team at Localgiving for your support! https://blog.localgiving.org/blogs/67/277/building-support-for-a-difficult  

Read More

FTWW & Cardiff University Work Together to Illustrate Symptoms of Endometriosis

FTWW & Cardiff University Work Together to Illustrate Symptoms of Endometriosis – 3o, January 2018. FTWW members from across Wales were proud and excited to be involved in a new and exciting method of collecting evidence around their experiences of endometriosis this week – a workshop using arts and comics to ‘draw out’ their personal stories, with the ultimate aim of producing an informative booklet to help increase awareness about the condition. As part of Welsh Government’s Task & Finish Group for Endometriosis, we have been working closely with representatives of Cardiff University School of Psychology, to fully gauge and represent the patient…

Read More

We Have 500 Members!

It is with great pleasure (tinged with a little sorrow) that we can announce that FTWW: Fair Treatment for the Women of Wales has reached a significant milestone in its relatively short (but highly productive!) existence – over 500 members of the organisation’s online support group! FTWW remains the ONLY Wales-based, patient-led, third sector organisation entirely focused upon girls’ / women’s health equality throughout the region. Despite having NO formal sources of funds, other than the kind donations of supporters, we’re proud to see this group continuing to grow: proud and a little sad that so many women require our…

Read More