Watch now: Endometriosis Action Month virtual panel in partnership with FTWW

A report from Endometriosis UK in March 2024 revealed that the average diagnosis time in Wales has risen to 9 years and 11 months.

This virtual panel event discussed this further and looked at work underway in Wales to address the problem, including the launch of new content on NHS Wales-approved website, Endometriosis Cymru, and a digitised Symptom Reporting Tool. Many thanks to Jenny Rathbone MS for chairing this event. 

This session featured:

  • Emma Cox, CEO of Endometriosis UK, to share some further insights from the report.
  • Debbie Shaffer, Founder of FTWW, and member of the Endometriosis Cymru team, joined by fellow team member and lead researcher, Professor Jacky Boivin (Cardiff University), to share information about the newly updated website.
  • Dr Robyn Jackowich (Cardiff University), who has led the development of the digital Endometriosis Cymru Symptom Reporting Tool, to explain how the tool has been developed and its aim of reducing diagnostic delays.
  • Mr Anthony Griffiths, Consultant Obstetrician and Gynaecologist at the University Hospital of Wales Teaching Hospital, Cardiff, where he provides care for endometriosis patients as part of a multidisciplinary tertiary centre.
  • Endometriosis UK Mid-Wales support group leader and volunteer, Lowri.